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Spina bifida

Spina bifida repair process animation

Find out more about treatments for spina bifida repair

For more information please visit...

SBH Scotland

Spina Bifida Hydrocephalus Scotland provides a lifetime commitment of support and information to all those affected by the conditions.

Shine

Providing specialist advice and support for spina bifida and hydrocephalus across England, Wales and Northern Ireland.

References

Copp AJ, Adzick NS, Chitty LS, Fletcher JM, Holmbeck GN, Shaw GM. Spina bifida. Nat Rev Dis Primers. 2015;1:15007. Published 2015 Apr 30. doi:10.1038/nrdp.2015.7

Williams LJ, Rasmussen SA, Flores A, Kirby RS, Edmonds LD. Decline in the prevalence of spina bifida and anencephaly by race/ethnicity: 1995-2002. Pediatrics. 2005 Sep;116(3):580-6. doi: 10.1542/peds.2005-0592. PMID: 16140696.

Huins, H. & Tidy, C., 2017. Spina Bifida. Patient, 15 07. https://patient.info/pregnancy/spina-bifida-leaflet

Adzick, S., 2013. fetal surgery for spina bifida: past, present , future. Semin Pediatr Surg., 22(1), pp. 10-7.

Gotha, L. et al., 2020. Fetal spina bifida: What we tell the parents. Prenatal Diagnosis, 40(12), pp. 1499-1507.

Morris, J. K. et al., 2016. Prevention of neural tube defects in the UK: a missed opportunity. Archives of disease in childhood, 101(7), pp. 604-607.

Nursing times, 2009. Birth defects and spina bifida risk linked to obesity in pregnancy. nursingtimes.net, 11 02

Texas children's fetal center, 2020. Fetoscopic repair of spina bifida. [Online]
Available at: https://women.texaschildrens.org/program/texas-childrens-fetal-center/procedures-offered/fetoscopic-repair-spina-bifida

Shaw, G. M., Velie, E. M. & Schaffer, D., 1996. Risk of neural tube defect - Affected pregnancies amoung obese women. JAMA, 275(14), pp. 1093-1096.

Roach, J. W., Short, B. F. & Saltzman, H. M., 2011. Adult Consequences of Spina bifida: A cohort study. clinical orthopaedics and related research, Volume 469, pp. 1246-1252.

Sacco, A., 2019. Fetal surgery for open spina bifida. The obstetrician and gynaecologist, 21(4), pp. 271-282.

Pedreira, D. A. et al., 2016. Fetoscopic repair of spina bifida: safer and better?. Ultrasound in obstetrics & gynecology: the official journal of the International society of ultrasound in obstetrics and gynecology, 48(2), pp. 141-147.

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